Candor Creek

Two (of many) drugs. Two stories. One really long post. These are just two of my medications. The one on the left costs about $105 each month; the one on the right is up to about $125 each month, both including standard shipping. That is over ONE QUARTER of my total income - disability and social security - each month. Before toilet paper, gas for the car, cleaning products, utilities - these need to be purchased or I will be nearly as sick as I was back when I had to live in a camper in my mother's driveway, bedridden. Many (healthy) people assumed that the health care acts during the Obama years would make life so much better; everyone would have coverage, meds would be so much cheaper, happy utopia. For eight years I and many other chronically ill Americans knew that that simply would not be the case. Yes, there were absolutely improvements that so many people benefitted from - myself included toward the end there, and I continue to benefit - but healthy people as a w...

Yo. A writer decides to write - and show off a gross, fat, stinky selfie ...so today is Rare Disease Day, which is a day to promote awareness for the weird little disorders that you see on TLC specials or read about in a Facebook forward between memes. Some are rare because they are new; others are not common due to their genetic nature. All are misfits in medical science, and most people that suffer from any one of them have facets to their diseases that people that suffer from more common disorders simply do not have to think about. Mast Cell Activation Syndrome (MCAS) is currently classified as a rare disease due to its newness. It was finally named as a condition in 2007 and given official diagnostic criteria in 2010. It is hypothesized that it is far more widespread than the data currently reflect. Seeking treatment and care for a disorder that is this new is difficult at best - and life-threatening at worst. When I saw the #ShowYourRare tag I was kinda iffy on doing anyt...